If you, or someone close to you, have been diagnosed with PSP, please do get in touch with us. We are here to help.
We have a team of specialists who can advise you, and a range of information. We also run local support groups and networks so that you can keep in touch with other families who share similar experiences.
You may feel a range of emotions on being diagnosed, such as relief, distress, denial or loneliness. These feelings are quite normal and usually subside as support becomes available.
It may help to talk things through with our Care and Support team so that things feel much more manageable.
Our new leaflet, ‘Life with PSP' gives practical tips on living with PSP and can be downloaded opposite. If you join The PSP Association we will also send a copy of the Carers' Information Pack, full of helpful information for anyone supporting you.
Please register with us!
We have the world's largest database on PSP and CBD but this is still less than a tenth of the people we know to be affected.
Whether you have PSP or CBD, or whether you are a carer or a health or social care professional supporting someone with PSP, joining us is so important.
You will help us to:
- Tailor our support for you
- Advise professionals who are supporting you
- Build an accurate picture of PSP and CBD around the country
- Influence national and local authorities to ensure good quality local services
- Find clues to the cause, treatment and prevention, thereby supporting research
- Raise awareness and build our voice for positive change.
Join The PSP Association.